Followed by English translation
現在高校2年生です。私は中学1年生の冬から、主に朝起きられない、頭痛、腹痛、全身倦怠感、不眠などの症状と闘っていました。当時はベッドからほとんど動けず学校にも全く行けていない状態でした。その後何個もの病院をめぐり、ようやく松井病院に辿り着くことができました。今は自然に朝目が覚めるようになり、夜も自然と眠りにつくことができています。ここまで回復したのは本当に松井病院の治療のおかげです。そこにいたるまでの経緯を詳しく書いていこうと思います。
中学1年生冬
とつぜん朝起きることができなくなる。どれだけ目覚ましをかけても目がさめず、昼の14時くらいまで寝ている。母が身体をゆすっても、声をかけても気づかず、失神したように寝ている。そして本人(私)はそうされたことを全く気づかなかった。目が覚めると身体が鉛の様に重く、起き上がれない。無理やり起き上がっても、立ちくらみがしてまたすぐ横になってしまう。頭が重く、食欲もない。夜になってくると、だんだん身体のだるさがなくなり元気になってくる。
地元(愛知)の大きな病院に行き、「起立性調節障害」と診断される。血圧を上げる薬を処方され、毎朝起床後飲んでいた。少し効いている気がした。学校は欠席もしたが、起きた後自分で学校に欠席の電話をする気力がなかったので6限から遅刻してでも行った。くつ下履くのにもとても時間がかかって(全身倦怠感で)、それでも無理して行ったのでどんどん体調が悪くなった。
中学2年生夏
大阪の起立性調節障害専門のクリニックに行った。脳血流が寝ている時、急に起き上がった時、ゆっくり起き上がった時、でどの様に変化するか検査し、重症だといわれた。家では水2L、塩分もとる、1時間以上散歩する、寝ながらスマホを見ないなどの指示を受け、そして不眠(22時に布団に入るが寝つくのは朝の5時)だったため、睡眠導入剤、と血圧を上げる薬が処方された。
大阪の病院で指示されたことを1ヶ月くらい続けていたら、少し自然に起きる時間が早まった。しかし睡眠導入剤を飲むと14時間くらいぶっ通しで寝ており、目が覚めた時の疲労感はすごかった。学校でさぼっていると誤解されたくなかったのと、欠席の電話をすることが特に避けたかったので、遅刻して6時限目だけでも、SHだけでも、根性で起きて行っていた。友人関係で大変なこともあったが、私は学校に行かなきゃ、授業受けたいと思っているのに、それでも起きられないのは、自分が本当は心のどこかで行きたくないと思っているからではないか、自分の意志、気持ち、メンタルが弱いから、起きられないのではないか、と思っていた。(学校に行くと緊張するのか、行く前は必ず腹痛になった。)
中学3年生春
愛知で高校進学することも考えたが、今のままだときっと高校にも朝から行けない、と思い福井に転校した。自分が学校に行けないのは身体のせいではなく、自分の気持ちの問題と思い込んでいたので、環境が変われば、朝起きられると思っていた。4、5月はすべて行けていたが(それでも身体にしんどさは残っていたが、気合で行っていた)、梅雨入りした6月から、身体が本当にしんどくなり遅刻をくり返した。朝は起きられなくなり、目がさめてから、起き上がるまでが、30分~1時間くらいかかった。頭がとにかく重く、立ちくらみがし、ふらふらで朝準備をしていた。気持ちの面では、転校前に比べ明るく、よくしゃべるようになっていた。
中学で遅刻もしていたが、どうしても行きたい全日制の高校があったため、そこに進学した。朝起きられないのは、年齢とともに治って行く、起立性調節障害は思春期の病と聞いていたので、高校進学を機に元通りの身体になるといいなと思っていた。(今考えれば、通学に1時間かかるその高校を選んだのは、当時の自分の体調に全くあっていないことだが、その時の私は、この高校でないと人生終わり!くらい思うまで、その高校がよかったので、これだけはゆずれなかった)このときは薬は飲まなかった。大阪のクリニックに指示されたことのみやっていたが、正直学校生活にいっぱい、いっぱいだったので、治療と呼べることをしておらず、徐々に症状は重くなっていった。
高校1年生春
無事高校進学し、4,5月はうそみたいに朝起きられて、毎日登校していた。腹痛もなくなり、朝のだるさはあったものの、なんとか朝起きれていた。
高校1年生夏
梅雨になり、今まで良好だった体調が、ガクッと崩れ、一気に欠席と遅刻が多くなった。体調が悪くなると気持ちの沈みもあった。頭痛が昼になっても続き、ふらふらだった。
高校1年生冬
朝起きるのが14時ごろになり、夜22時にお布団に入っても、寝付くのは5時くらいだった。起き上がることが身体が重くてできなかった。なんとかこの状況から抜け出したくて、東京にあるクリニックで硬膜外気体注入療法も受けた。それと同じところで酸素カプセルに入る治療も受けた。腰らへんに注射をして空気を入れる療法で、同じ症状を持つ友人が受けて、よくなったと聞き、東京まで行った。しかし私にはあまり効果がでず、背中が痛くなり、その後2日間はぐったりとしていて胸のあたりが苦しかった。何回もやることで効果がでる患者さんもいたようだが、私はそれきり行かなかった。遅刻が多かったが、7限からでも遅刻して行ったため欠席が少なかったため進級ができた。
高校2年生春
頭痛、吐き気、ふらつき、不眠、朝起きられないなどの症状があり、ほぼ毎日7限から遅刻、大阪のクリニックに言われたことを続けているのに、体調は悪くなるばかり。
本当に薬などに頼らずに元気になりたい!! 原因をつきとめて根本的なところから治したい!!と思い、松井病院をネットで見つけた。
現在
松井病院を見つけてから、すぐ電話して入院治療を受けると決めました。初めて先生の診察を受けた時、「起立性調節障害は治りますよ」と断言された時のおどろきと感動と、安心、よかった・・・、という気持ちがずっと忘れられません。長らく続いたこの日々にようやく終わりがみえた、もうどうしていいのか分からなかったので、やっと希望が見え、うれしくて胸が震えました。そして何より、うれしかったのが、起立性調節障害は心の病気ではないということ、気持ちが弱いから起きられないわけではない、首が悪いから起きられなかったり、気持ちが落ち込んだりするんだ、ということが分かったということです。そして、それは松井病院で治療を受ければ治る、よくなる。ここで約1か月入院しましたが、だんだん朝起きられるようになり、夜22時くらいに自然にねむれるようになりました。頭痛の症状がなくなり、身体のだるさも、起き上がるときのつらさも、徐々にへっていきました。気持ちも明るくなっていき、今は朝起きて、楽しい1日を過ごして夜自然に寝る自分が想像できるし、きっと退院した後もそうなるだろうなと思います。ここで治療を受けられたことを本当に感謝です。
本当にお世話になりました。ありがとうございました。そして治療をはなれていても応援してくれた、家族、ありがとう。多くの人に応援してもらったので入院生活がんばることができました。ありがとうございました
症状経過
I am currently a second-year high school student. Since the winter of my first year of junior high school, I have struggled with symptoms such as not being able to wake up in the morning, headaches, stomach aches, general fatigue, and insomnia.
At the time, I was barely able to move from my bed and could not go to school at all. After visiting several hospitals, I was finally able to find Matsui Hospital.
Now, I wake up naturally in the morning and fall asleep naturally at night.
I really owe my recovery to the treatment at Matsui Hospital. I would like to write in detail about how I got to this point.
Winter, first year of junior high school
Suddenly, I can't get up in the morning. No matter how many times I set the alarm, I can't wake up, and I sleep until about 2pm. My mother shakes me or calls out to me, but I don't notice, I just sleep as if I've fainted. And I didn't notice at all. When I wake up, my body is heavy like lead and I can't get up. Even if I force myself to get up, I get dizzy and lie down again. My head is heavy and I have no appetite. As night comes, my body gradually becomes less sluggish and I start to feel better.
I went to a big hospital in my hometown (Aichi Prefecture) and was diagnosed with Orthostatic Dysregulation(OD). I was prescribed a blood pressure medication, which I took every morning after waking up. I felt like it was working a little. I also missed school, but I didn't have the energy to call the school after waking up to tell them I was absent, so I went even though I was late for the sixth period. It took me a long time to put on my socks (I was so tired), but I forced myself to go anyway, and my condition got worse and worse.
After about a month of following the instructions given at the hospital in Osaka, I naturally woke up a little earlier. However, after taking the sleeping pills, I slept for about 14 hours straight, and I felt extremely tired when I woke up. I didn't want to be misunderstood as slacking off at school, and I especially wanted to avoid calling in to say I was absent, so I would force myself to get up even if I was late for the sixth period or just for SH(Short home room).
I had some difficulties with my friends, but I had to go to school, I wanted to attend classes, but I couldn't get up. I thought that maybe it was because somewhere in my heart I didn't really want to go, and that I couldn't get up because my will, feelings, and mentality were weak. (Maybe it was because I got nervous when I went to school, but I always had a stomachache before going.)
Spring of third year of junior high school
I thought about going to high school in Aichi Prefecture, but I thought that I would not be able to go to high school in the morning if I continued like this, so I transferred to a junior high school in Fukui Prefecture.
I thought that the reason I could not go to school was not because of my body, but because of my feelings, so I thought that if I changed my environment, I would be able to wake up in the morning.
I was able to go to all classes in April and May (I still felt physically exhausted, but I went with determination), but from the rainy season in June, my body really started to feel exhausted and I started to be late again and again. I couldn't get up in the morning, and it took me 30 minutes to an hour to get up after waking up. My head felt heavy, I felt dizzy, and I was getting ready in the morning feeling dizzy. Emotionally, I was feeling brighter and more talkative than before I moved to Fukui Prefecture.
Although I was late for school in junior high school, I really wanted to go to a full-time high school, so I went to that high school. I had heard that not being able to get up in the morning would improve with age, and that Orthostatic Dysregulation was an adolescent illness, so I was hoping that going to high school would be an opportunity for my body to return to normal.
(Looking back, choosing that high school, which was an hour's commute, was completely unsuitable for my physical condition at the time, but at the time I was so determined to go to this school that I almost felt like my life was over if I didn't go to this school, so I just couldn't give up on going to this school.) I didn't take any medication this time.
I was doing only what I was instructed to do at the clinic in Osaka, but to be honest I was so busy with school life that I wasn't doing anything that could be called treatment, and my symptoms gradually got worse.
Spring of my first year of high school
I successfully entered high school, and in April and May, I was able to wake up in the morning like it was a lie, and went to school every day. My stomach aches were gone, and although I still felt tired in the mornings, I was somehow able to wake up in the mornings.
Summer of my first year of high school.
The rainy season arrived and my health, which had been good up until then, suddenly took a beating, and I started to miss classes and be late all at once. When my health got worse, I also felt depressed. My headache continued into the afternoon and I felt dizzy.
Winter, first year of high school
I started waking up around 2pm, and even if I went to bed at 10pm, I didn't fall asleep until around 5am. My body was so heavy that I couldn't get up. Wanting to somehow get out of this situation, I received epidural gas injection therapy at a clinic in Tokyo. I also received treatment in an oxygen capsule at the same place. I heard that a friend with the same symptoms had been treated at that hospital and got better.
However, it didn't have much effect on me, and my back started to hurt, and I was exhausted for two days afterwards, and my chest was painful. It seems that some patients benefited from doing it multiple times, but I didn't go after that. I was often late, but I was able to advance to the next grade because I was late even for the 7th period, so I was absent very little.
Spring of my second year of high school
I was suffering from symptoms such as headaches, nausea, dizziness, insomnia, and difficulty waking up in the morning. I was late to the seventh period almost every day, and even though I was following the advice of the clinic in Osaka, my condition only got worse.
I really wanted to get better without relying on medicine!! I wanted to find the cause and cure it from the root!! So I found Matsui Hospital on the internet.
Now
After I found Matsui Hospital, I immediately called and decided to receive inpatient treatment. I will never forget the surprise, emotion, relief, and happiness I felt when I was examined by the doctor for the first time and was told that my Orthostatic Dysregulation could be cured. I finally saw an end to these long-lasting days, and I didn't know what to do anymore, so I was so happy to finally see hope that I was overwhelmed with joy.
What was also good for me was that Orthostatic Dysregulation is not a mental illness, and it's not that I can't get up because I'm weak-willed; it's that my neck is bad, which is why I can't get up and why I feel depressed.
And if you receive treatment at Matsui Hospital, that will be cured and you will get better. I was hospitalized here for about a month, and gradually I was able to wake up in the morning and fall asleep naturally at around 10pm. The headache symptoms disappeared, and the fatigue in my body and the pain when getting up also gradually subsided. My mood also became brighter, and now I can imagine myself waking up in the morning, having a fun day, and falling asleep naturally at night, and I'm sure that will be the case after I'm released from the hospital. I am truly grateful to have been able to receive treatment here.
My mood has improved, and now I can imagine myself waking up in the morning, having a good day, and going to bed naturally at night, and I'm sure that will be the case even after I leave the hospital. I'm really grateful that I was able to receive treatment here.
Thank you so much for all your help. And to my family, thank you for supporting me even though you were not there for treatment. I was able to endure my hospital stay thanks to the support of so many people. Thank you very much.
Course of symptoms